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Writer's pictureSally O'Gwin Gentry

Fighting your way through all of the pain, confusion and misconceptions.

Updated: May 31, 2020



In just reading thru literature, the definitions, symptoms, causes, possible treatments and long coming diagnosis are confusing and discouraging at times. One definition describes fibro as stiffness and tenderness of muscle, tendons, and joints, without inflammation. I described it as burning, stabbing, freezing pain all over my body! On a scale of 1 - 10, it would be 200 ! 🤯 🤕 I really hate those pain scales anyway! I always feel guilty when the pain is so high!!! Boy, guilt can be a number of other posts!
Undue fatigue plagues 90 % of patients with fibro. It seems in my case, I have to take so much additional medication for anxiety and insomnia, that I don't really wake up until after lunch. Then it is naptime! I struggle with guilt because I feel sorry for my husband because I have so little energy. But he has been the greatest support, even though at times I have put so much stress on him. My whole family has been wonderful. And my friends are so dear to me in their loving, non judgemental way! It is more important than ever to surround yourself with positivity as much as possible, rather than negativity. It takes so much more energy to deal with negative people rather than positive people. I used to be a counselor, and I would remind people that it took so many more muscles to frown rather than smile! 😁


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6 Comments


Sally O'Gwin Gentry
Sally O'Gwin Gentry
Jun 01, 2020

Oh, I'm so sorry about your leg! It just steals your ability to do simple things that we used to take for granted! If you don't mind, I would like to share your comment Just let me know! Best to you, Elaine.

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Elaine M Mccurdy
Elaine M Mccurdy
May 31, 2020

My left leg has been bothering me like never before. It feels like a stabbing fiery pain shoots down it with every step. Yes, fibro is painful. I have to also take other meds for anxiety and also residual pain from chemo. It's a good day when I can just take a step without flinching. This disease steals ability to just do the normal things I just took for granted! Best to you all.

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mrglmb60
May 31, 2020

Your statements are well put and I want to thank you for sharing your families experiences with fibro.

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zapata.momma
May 31, 2020

Hi Sally, I can relate to your description of your symptoms. One thing I have learned after speaking with so many women who have fibro is that everyone’s symptoms can be so different from my own. Although, there are usually a few symptoms we all have in common. Another thing I found was that everyone has a different degree of pain and fatigue. One of the first discoveries I made in my quest to research this syndrome/disease is that it is genetic. I come from a large family I have six sisters and one brother. Of the eight of us four of us have been diagnosed with fibro. One of my sisters has a severe case, I would de…

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Sally O'Gwin Gentry
Sally O'Gwin Gentry
May 30, 2020

Hey, I am so sorry that you have to struggle with all that darn pain!!! Not fair, not fair!!! And you have it spread out through out your body too. 😓 But onward we go. Be glad when they get your condo pool fixed. I'm going to start going to swim in July. That will be good. God bless! And let's keep writing!!!! 🥰

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